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Ellen Wright Clayton

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Photo of Ellen Wright Clayton

Rosalind E. Franklin Professor of Genetics and Health Policy .Professor of Law .Professor of Pediatrics

Voice: (615) 322-2598
Fax: (615) 322-6631
Email: ellen.clayton@vanderbilt.edu
Office: Room 273
View curriculum vitae (.pdf)

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Research Interest(s)

Law and genetics; the intersection of law, medicine and public health

Education

M.D. Harvard University
J.D. Yale University
M.S. Stanford University
B.S. Duke University

Biography

Ellen Wright Clayton is an internationally respected leader in the field of law and genetics who holds appointments in both the law and medical schools at Vanderbilt, where she also directs the Center for Biomedical Ethics and Society. She has published two books and more than 80 scholarly articles and chapters in medical journals, interdisciplinary journals and law journals on the intersection of law, medicine and public health. In addition, she has collaborated with faculty and students throughout Vanderbilt and in many institutions around the country on interdisciplinary research projects. An active participant in policy debates, she has advised the National Institutes of Health as well as other federal and international bodies on an array of topics ranging from children's health to the ethical conduct of research involving human subjects. She is currently a member of the National Advisory Committee for the National Children’s Study. Professor Clayton had worked on a number of projects for the Institute of Medicine, of which she is a member, and is currently chairing an IOM study evaluating vaccine safety. She is also coordinating the Consent and Community Consultation working group of a five-institution consortium exploring the use of electronic medical records for genome-wide association studies. Over the course of her career, she has helped to develop policy statements for numerous national and international organizations.

Representative Publications

Books

  • Bioethics and Law, 2nd edition, Thomson West (2002) (with M. Shapiro, R. Spece & R. Dresser)

Articles

  • “Incidental Findings in Genetics Research Using Archived DNA,” 36 Journal of Law, Medicine, and Ethics 286 (2008)

  • “Development of a Large-Scale Deidentified DNA Biobank to Enable Personalized Medicine,” 84 Clinical Pharmacology and Therapeutics 362 (2008) (with D. Roden, J. Pulley, M. Basford, G. Bernard, J. Balser & D. Masys)

  • "Integrating Genetics into Public Health Policy and Practice," in Law in Public Health Practice, 2d ed., New York: Oxford University Press 323-337 (2007) (Richard A. Goodman & Karen Foster, editors)

  • "Genetics, Populations, and Public Health: A Complex Relationship," 30 Journal of Law, Medicine, and Ethics 290-7 (2002). Reprinted in Public Health Ethics: Theory, Policy, and Practice, Oxford-New York (2006)

  • "Patients and Biobanks," 51(4) Villanova Law Review 793 (2006)

  • "The Web of Relations: Thinking about Physicians and Patients," 6 Yale Journal of Health Policy, Law, and Ethics 2:465-477 (2006)

  • "Informed Consent and Biobanks," 33 Journal of Law, Medicine and Ethics  15-21 (2005)

  • "Ethical, Legal, and Social Implication of Genomic Medicine," 349 New England Journal of Medicine  562-9 (2003). Reprinted in Genomic Medicine, Johns Hopkins (2004) (Alan E. Guttmacher, Francis S. Collins & Jeffrey M. Drazen, eds.)

  • "Policy Challenges: Ethical, Legal, and Social Implications of Genetics," in Genetics and Ethics: An Interdisciplinary Study, St. Louis University Press (Gerald Magill, ed., 2003)

Presentations

  • A Review of the HHS Family Planning Program: Mission, Management, and Measurement of Results. Comprehensive Review of the DHHS Office of Family Planning Title X Program (Task Force report; served as chair) (2009)



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