Ellen Wright Clayton
Craig-Weaver Professor of Pediatrics Professor of Law
Voice: (615) 322-2598
Fax: (615) 322-6631
Email: ellen.clayton@vanderbilt.edu
Office: Room 273
View curriculum vitae (.pdf)
Links
Research Interest(s)
Law and genetics; the intersection of law, medicine and public health
Education
M.D. Harvard University
J.D. Yale University
M.S. Stanford University
B.S. Duke University
Biography
Ellen Wright Clayton is an internationally respected leader in the field of law and genetics who holds appointments in both the law and medical schools at Vanderbilt, where she also co-founded the Center for Biomedical Ethics and Society. She has published two books and more than 100 scholarly articles and chapters in medical journals, interdisciplinary journals and law journals on the intersection of law, medicine and public health. In addition, she has collaborated with faculty and students throughout Vanderbilt and in many institutions around the country and the world on interdisciplinary research projects, and helped to develop policy statements for numerous national and international organizations. An active participant in policy debates, she has advised the National Institutes of Health as well as other federal and international bodies on an array of topics ranging from children's health to the ethical conduct of research involving human subjects. Professor Clayton has worked on a number of projects for the Institute of Medicine, of which she is a member of its National Advisory Council, and is currently vice-chair of a committee evaluating commercial sex exploitation in the United States. She also coordinated the Consent and Community Consultation working group of a five-institution consortium exploring the use of electronic medical records for genome-wide association studies. She is an elected Fellow of the American Academy for the Advancement of Science.
Representative Publications
Books
Bioethics and Law, 2nd edition, Thomson West (2002) (with M. Shapiro, R. Spece & R. Dresser)
Articles
"Return of Individual Research Results from Genome-wide Association Studies: Experience of the Electronic Medical Records & Genomics (eMERGE) Network," 2012 Genetics in Medicine (with Stephanie M. Fullerton, Wendy A. Wolf, Kyle B. Brothers, Dana C. Crawford, Joshua C. Denny, Philip Greenland, Barbara A. Koenig, Kathleen A. Leppig, Noralane M. Lindor, Catherine A. McCarty, Amy L. McGuire, Eugenia R. McPeek Hinz, Daniel B. Mirel, Erin M. Ramos, Marylyn D. Ritchie, Maureen E. Smith, Carol J. Waudby, Wylie Burke, Gail P. Jarvik)
"The Legal Risks of Returning Results of Genomics Research," 2012 Genetics in Medicine (with Amy L. McGuire)
"Two Large-Scale Surveys on Community Attitudes Toward an Opt-Out Biobank,” 155:12 American Journal of Medical Genetics 2982 (2011) (with Kyle Brothers and Daniel R. Morrison)
"Ethical and Practical Challenges of Sharing Data from Genome-Wide Association Studies: The eMERGE Consortium Experience," 21:7 Genome Research 1001 (2011) (with Amy L. McGuire, Melissa Basford, Lynn G. Dressler, Stephanie M. Fullerton, Barbara A. Koenig, Rongling Li, Cathy A. McCarty, Erin Ramos, Maureen E. Smith, Carol P. Somkin, Carol Waudby and Wendy A. Wolf)
"Confronting Real Time Ethical, Legal, and Social Issues in the eMERGE (Electronic Medical Records and Genomics) Consortium," 12 Genetics in Medicine 616 (2010) (with Maureen Smith, Stephanie M. Fullerton, Wylie Burke, Catherine A. McCarty, Barbara A. Koenig, Amy L. McGuire, Laura M. Beskow, Lynn Dressler, Amy A. Lemke, Erin M. Ramos, and Laura Lyman Rodrigue for the Consent and Community Consultation Working Group of the eMERGE Consortium)
"State Run Newborn Screening in the Genomic Era, or How to Avoid Drowning When Drinking From a Fire Hose," Journal of Law, Medicine, and Ethics 2010 Sep; 38(3):697-700 PMID: 20880251
"The Ethical Health Lawyer: An Empirical Assessment of Moral Decision Making," 37 Journal of Law, Medicine, and Ethics 461 (2009) (with Joshua E. Perry, Ilene N. Moore, Bruce Barry, and Amanda Carrico)
“Development of a Large-Scale Deidentified DNA Biobank to Enable Personalized Medicine,” 84 Clinical Pharmacology and Therapeutics 362 (2008) (with D. Roden, J. Pulley, M. Basford, G. Bernard, J. Balser & D. Masys)
"Integrating Genetics into Public Health Policy and Practice," in Law in Public Health Practice, 2d ed., New York: Oxford University Press 323-337 (2007) (Richard A. Goodman & Karen Foster, editors)
"The Web of Relations: Thinking about Physicians and Patients," 6 Yale Journal of Health Policy, Law, and Ethics 2:465-477 (2006)
Presentations
Committee Report: Committee to Review Adverse Effects of Vaccines, Adverse Effects of Vaccines: Evidence and Causality (served as chair) (2011)
A Review of the HHS Family Planning Program: Mission, Management, and Measurement of Results. Comprehensive Review of the DHHS Office of Family Planning Title X Program (Task Force report; served as chair) (2009)
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