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Ellen Wright Clayton

Craig-Weaver Professor of Pediatrics
Professor of Law

Ellen Wright Clayton is an internationally respected leader in the field of law and genetics who holds appointments in both the law and medical schools at Vanderbilt, where she also co-founded and directed the Center for Biomedical Ethics and Society. She has published two books and more than 150 scholarly articles and chapters in medical journals, interdisciplinary journals and law journals on the intersection of law, medicine and public health. In addition, she has collaborated with faculty and students throughout Vanderbilt and in many institutions around the country and the world on interdisciplinary research projects, and helped to develop policy statements for numerous national and international organizations. She currently chairs the Paediatric Platform of the international Public Population Program in Genomics.  An active participant in policy debates, she has advised the National Institutes of Health as well as other federal and international bodies on an array of topics ranging from children's health to the ethical conduct of research involving human subjects. Professor Clayton has worked on a number of projects for the National Academy of Medicine, of which she is a member of the executive committee of its National Advisory Council, chair of the Board on Population Health and Public Health Practice, and was chair of its committee to define myalgic encephalomyelitis/chronic fatigue syndrome. She is also a member of the National Academies’ Report Review Committee.  She is an elected Fellow of the American Academy for the Advancement of Science.

Research Interests

Ethical, legal, and social issues in genomics research and in translating genomics into the clinic

Representative Publications

  • "Why the Americans with Disabilities Act Matters for Genetics," 313 Journal of the American Medical Association 2225 (2015)
    Full Text | WWW
  • "How much control do children and adolescents have over genomic testing, parental access to their results, and parental communication of those results to others?" Journal of Law, Medicine, and Ethics (in press, 2015)
    Full Text | WWW
  • "Practical Guidance on Informed Consent for Pediatric Participants in a Biorepository," 89 Mayo Clinic Proceedings 1471 (2014) (with Kyle B. Brothers, John A. Lynch, Sharon A. Aufox, John J. Connolly, Bruce D. Gelb, Ingrid A. Holm, Saskia C. Sanderson, Jennifer B. McCormick, Janet L. Williams and Wendy A. Wolf, Armand H. Annomaria)
    Full Text | WWW
  • "Biospecimen Exceptionalism in the ANPRM," in I. Glenn Cohen and Holly Fernandez Lynch, Human Subjects Research Regulation: Perspectives on the Future, MIT Press (2014)
    Full Text | WWW
  • "Addressing the Ethical Challenges in Genetic Testing and Sequencing of Children," 14 American Journal of Bioethics 3 (2014) (with Laurence B. McCullough, Leslie G. Biesecker, Steven Joffe, Lainie Friedman Ross and Susan M. Wolf)
    Full Text | WWW
  • "Can I Be Sued for That?  Liability Risk and the Disclosure of Clinically Significant Genetic Research Findings," 24 Genome Research 719 (2014) (with Amy L. McGuire, Bartha M. Knoppers and Ma’n H. Zawati)
  • "Managing Incidental Genomic Findings: Legal Obligations of Clinicians," Genetics in Medicine (Epub ahead of print, 2013) (with Susanne Haga, Patricia Kuszler, Emily Bane, Krysta Shutske and Wylie Burke)
    Full Text | WWW
  • "Seeking genomic knowledge: The case for clinical restraint," 64 Hastings Law Journal 1649 (2013) (with Wylie Burke and Susan Brown Trinidad)
    Full Text | PDF
  • "The Web of Relations: Thinking About Physicians and Patients," 6 Yale Journal of Health Policy, Law, and Ethics 465 (2006)
    Full Text | HEIN
  • "What Should the Law Say About Disclosure of Genetic Information to Relatives," 1 Journal of Health Care Law & Policy 373 (1998)
    Full Text | PDF